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An action by Fondation René Touraine

Genodermatoses & Rare Skin Disorders Network - a Fondation René Touraine’s network to improve health care and social support for patients with severe and rare skin disorders

Since 2003, the Fondation René Touraine has coordinated the Genodermatoses & Rare Skin Disorders Network. Medical and paramedical teams, patient representatives, scientists, public health authorities, industries work together to improve health care and social support for patients with severe and rare skin disorders, and to promote a patient based approach.

The Genodermatoses & Rare Skin Disorders Network is involved in Europe, Mediterranean and Middle-Eastern countries. This network is open to every expert and centre involved in the management of severe genodermatoses and rare skin disorders. Join the network!

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