The next Genodermatoses in Mediterranean - Together Against Genodermatosesworking session will be held on October 13-15, 2011. It is organized b MAGEC - Necker, the national centre of expertise for genetic skin diseases at Necker - Enfants Malades Hospital in Paris.
To prepare this meeting, we invite health care professionals and patient organizations to answer a questionnaire. Three sections will cover:
- « Tips and hints » developed by patients and caregivers to improve the daily life in these diseases.
- Medicine, cosmetics, medical devices and other products required to improve patient care.
- What you can bring and what you can expect from collaborative projects in the field of diagnostic, care, training, clinical and therapeutic research.
If you wish to participate to this survey, please send us an email.
If you wish to learn more about the programme, please click here.
If you wish to apply to an educationnal grant, please click here.
See you in Paris, it is an honour and a pleasure to welcome you here.
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on rare skin diseases
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