Help us to improve healthcare for patients suffering from genetic skin diseases.

   making a donation now!

Xeroderma Pigmentosum: National diagnosis and treatment protocol

Thursday 3 September 2009

National diagnosis and treatment protocol for a rare disease, Haute Autorité de la Santé, Ministère de la Santé, France

The purpose of this national diagnosis and treatment protocol (PNDS) is to outline to health providers the optimum management and integrated care pathway for patients with long-term conditions (ALD), particularly with status ALD 11: xeroderma pigmentosum (XP).

>> Learn more

Resources directory
on rare skin diseases

Care lookup

Looking for a specialist or a patients association?

Check our network map.

Follow us

Fondation René Touraine