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EURORDIS Policy Fact Sheets

Saturday 10 July 2010

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 434 rare diseases patient organisations in over 43 countries.

The EURORDIS Policy Fact Sheets are available on their website. These two page documents are intended as advocacy tools to support the implementation of key policy recommendations and facilitate their transposition into national plans and strategies on rare diseases. Most recent topics include: Centres of Expertise; European Reference Networks; National Helplines; European Network of Helplines; Respite Care Services and the Needs and priorities for research in the field of RDs.

Fondation René Touraine