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Wednesday 27 January 2010


2009 has been a good year for TAG and Genodermatoses in Mediterranean:

  • new partners have joined the project: Kuwait, Bulgaria, Spain
  • the project has been taken into account as a pilot network for the management of rare diseases and for the complementarity between European and North-South networks.

2010 promises to be exciting:

  • all together, we have to develop recommendations for health care and social support and adapt them to the situation of each country.
  • all together, we have to identify the available resources (diagnostic tests, clinics, associations of patients, research and trials, websites...), in each country
  • evreyone will contribute to the newsletter to be published every 2 months in French and in English: the next newsletter will be published in February.
  • further discussion on opening the project to other countries: this question arises because the project has been selected as pilot for the European Reference Networks
  • at last, a highlight will be the 2010 working session from 22 to 24 October, in Rome, Italy
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