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Congratulations to the successul applicants to the 2016 Educational Grant !

List of sucessful applications by country alphabetical order :

Grantee Affiliation Project
C. Prodinger Paracelsus Medical University Clinic Salzburg, Austria Improving health care of patients with rare diseases in Austria via setting up standardized questionnaires and (internal) guidelines
B. Binkova Department of Pediatric Dermatology, Faculty Hospital Brno, Czech Republic Congenital ichthyoses - a comparison of the clinical picture of molecular genetic and histopathological examination
A. Hotz Universitätsklinikum Freiburg, Institut für Humangenetik, DNA-Diagnostik, Germany Molecular genetic diagnostics in patients with genodermatoses
S. Guez EB center of Milan, Italy Administration of family/parental burden questionnaire in the Italian cohort of Milan EB Center
I. Russo Unit of Dermatology, University of Padua, Italy “Who does what ?” : a web page with practical information about diagnosis, treatment and follow up of rare skin diseases
K. Černauskiene & V. Vilkickaite Dept of Skin and Ven Diseases Hospital of LUHS Kauno klinikos, Lithuania Social support for patients with Epidermolysis bullosa and other rare skin diseases in Lithuania
P. Colbu Dermatology and Venerology, Apollonia University, Nicolina Medical Center, Saint Mary Children Hospital, Iasi, Romania Diagnosis and Management of Patients with Mastocytosis in Children in Iasi-Romania
S. Youssef Service de Dermatologie, Hôpital Militaire de Tunis, Tunisia How to improve diagnosis and management of rare hereditary palmo-plantar keratoderma (HPPK) in military institution ?
T. Burak Istanbul Medeniyet University Goztepe Research and Training Hospital, Department of Dermatology Establishment of a virtual platform for the Turkish patients with xeroderma pigmentosum and their families
Annuaire des services pour les maladies rares de la peau

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