Congratulations to the successul applicants to the 2016 Educational Grant!
List of sucessful applications by country alphabetical order:
|C. Prodinger||Paracelsus Medical University Clinic Salzburg, Austria||Improving health care of patients with rare diseases in Austria via setting up standardized questionnaires and (internal) guidelines|
|B. Binkova||Department of Pediatric Dermatology, Faculty Hospital Brno, Czech Republic||Congenital ichthyoses - a comparison of the clinical picture of molecular genetic and histopathological examination|
|A. Hotz||Universitätsklinikum Freiburg, Institut für Humangenetik, DNA-Diagnostik, Germany||Molecular genetic diagnostics in patients with genodermatoses|
|S. Guez||EB center of Milan, Italy||Administration of family/parental burden questionnaire in the Italian cohort of Milan EB Center|
|I. Russo||Unit of Dermatology, University of Padua, Italy||“Who does what?”: a web page with practical information about diagnosis, treatment and follow up of rare skin diseases|
|K. Černauskiene & V. Vilkickaite||Dept of Skin and Ven Diseases Hospital of LUHS Kauno klinikos, Lithuania||Social support for patients with Epidermolysis bullosa and other rare skin diseases in Lithuania|
|P. Colbu||Dermatology and Venerology, Apollonia University, Nicolina Medical Center, Saint Mary Children Hospital, Iasi, Romania||Diagnosis and Management of Patients with Mastocytosis in Children in Iasi-Romania|
|S. Youssef||Service de Dermatologie, Hôpital Militaire de Tunis, Tunisia||How to improve diagnosis and management of rare hereditary palmo-plantar keratoderma (HPPK) in military institution?|
|T. Burak||Istanbul Medeniyet University Goztepe Research and Training Hospital, Department of Dermatology||Establishment of a virtual platform for the Turkish patients with xeroderma pigmentosum and their families|
on rare skin diseases
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