On June an application for the creation of a European Reference Netwotk (ERN) in the field of dermatology was submitted to the European Commission (EC).
The ERN-Skin, it is 56 centres of expertise in the field of rare and complex skin diseases from 18 countries gathered in one network to bring highly-specialised, high-quality and accessible healthcare closer to the patients.
The ERN-Skin has the official endorsement of the 3 main European societies in the field of dermatology:
- the European Academy of Dermatology and Venereology (EADV);
- the European Society of Paediatric Dermatology (ESPD);
- the European Dermatology Forum (EDF).
The ERN-Skin also has the support of Eurordis.
The ERN-Skin application is coordinated by Prof. Christine Bodemer (APHP - Necker Enfants Malades Hospital - Department of Dermatology - MAGEC) with the support of Fondation René Touraine - Genodermatoses & Rare Skin Disorders Network.
The skin is the common organ with the same tools for histological diagnosis and a very specific management requiring a multidisciplinary approach and a set of highly specialised expertise and resources. A thematic dermatological networking, as the ERN-Skin, is highly essential to improve the quality and access of healthcare for patients with rare and complex skin diseases.
on rare skin diseases
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