You are visiting a Fondation René Touraine website.    Donate English Français

Preliminary Programme

The steering committee is composed of:

  • B. Marinovic, Head of the Dept. of Dermatology and Venereology of the University Hospital Center, Zagreb
  • C. Bodemer, Head of the Department of Dermatology, Necker Enfants Malades Hospital, Institut IMAGINE, Paris, France, Coordinator of the ERN-Skin application - President Genodermatoses & Rare Skin Diseases Network
  • M. El-Hachem, Head of the Department of Dermatology, Ospedale Pediatrico Bambino Gesù, Rome, Italy Co- coordinator of the ERN-Skin application - President-elect of Genodermatoses & Rare Skin Diseases Network
  • J. Bauer, Head of the Department of Dermatology, Paracelsus Medical University Salzburg, Austria - Co- coordinator of the ERN-Skin application - Past-President Genodermatoses & Rare Skin Diseases Network

Neonates

  •  9:00-9:35 - Blistering in neonates: EB diagnosis - Jemima Mellerio
  • 9:35-10:10 - Scaling erythroderma in neonates : the diagnostic keys - Christine Bodemer  

Children and adults

  • 10:10-10:45 - Ichthyoses: management - Angela Hernandez
  • 10:45-11:20 - Palmoplantar keratoderma - Ana Bakja-Konsuo

11:20-11:45 - Break

  • 11:45-12:20 - Autoimmune bullous diseases: therapeutic update - Katerina Patsatsi
  • 12:20-12:55 - Genetic testing - Johann Bauer

13:00- 14:00 - Lunch

  • 14:00- 14:35 - Cutaneous Mosaic disorders: definition and examples - Veronica Kinsler
  • 14:35-15:10 - Multidisciplinarity care: the key role of paramedics and patient groups - Branka Marinović, Slobodna Murat-Sušić
  • 15:10-15:45 - EB patients: management - Marcel Jonkman

15:45-16:15 - Break

Specific problems

  • 16:15- 16:35 - Pain - Maja Karaman
  • 16:35-16:55 - Pruritus - Mihael Skerlev

Clinical cases

  • 17:00-17:30 - Case reports

    To register, please contact: marie.guillou@fondation-r-touraine.org
Resources directory
on rare skin diseases

Care lookup

Looking for a specialist or a patients association?

Check our network map.

Follow us

Fondation René Touraine