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A pilot ERN for Rare and Undiagnosed Skin Disorders

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The Genodermatoses & Rare Skin Disorders Network has been co-funded from 2008 to 2011 by the European Commission as a pilote European Reference Network for Rare Diseases (TAG grant agreement 2007 335).

Since then, the Genodermatoses & Rare Skin Disorders Network develops an inclusive approach to involve in the network experts and centers taking care of patients with rare skin diseases.

The network works in close collaboration with other networks such as EADV Task Forces, Geneskin, EB-Clinet, patient groups and alliances such as Eurordis and also rare diseases organizations such as Orphanet.

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