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Improve health care and social support for patients with severe and rare skin disorders

Genodermatoses & Rare Skin Disorders Network - a Fondation René Touraine’s network to improve health care and social support for patients with severe and rare skin disorders

Since 2003, the Fondation René Touraine has coordinated the Genodermatoses & Rare Skin Disorders Network. Medical and paramedical teams, patient representatives, scientists, public health authorities, industries work together to improve health care and social support for patients with severe and rare skin disorders, and to promote a patient based approach.

The Genodermatoses & Rare Skin Disorders Network is involved in Europe, Mediterranean and Middle-Eastern countries. This network is open to every expert and centre involved in the management of severe genodermatoses and rare skin disorders. Join the network!


An international network to foster national initiatives

Genodermatoses & Rare Skin Disorders are the subject of a long-standing and efficient collaboration in genetics in the European, Mediterranean and the Middle-Eastern countries.

Meanwhile, many actions have been undertaken to improve health care and social life of the patients.

The Genodermatoses & Rare Skin Disorders Network aims at supporting these actions through an international network.

Fondation René Touraine has launched this cooperation project thanks to the support of Laboratoires Pierre Fabre and the involvement of dermatologists from the European, Mediterranean and Middle-Eastern countries.

GIF - 3.8 kb

From 2008 to 2011, the Genodermatoses Network was co-funded by the European Union, as a pilot network for European Reference Network for Rare Diseases: Together Against Genodermatoses (TAG-2007 335).

Since 2013, this project is supported by the European Academy of Dermatology and Venereology.

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